Update

Firstly, sorry for not updating sooner.  I'm doing ok, desperately trying to get as fit as possible before Radiotherapy but my mind is more ready for it than my body at the moment.  I returned to yoga last week and while I was happy to be able to go, I was frustrated at not being able to do as much as I would have liked.

So, on to the important stuff,  after a fashion I did get the results of my ocular MRI.  Whilst it was discussed the same week at the MDT meeting, trying to get any details out of them has been hard work and stressful.  Very long story short, I finally went to my lovely GP and got print outs of all my reports, pathology and MRI's so I'm now equipped with all the info.

So, the latest MRI shows no major change in size of the mass behind my eye.  Specifically the mass is surrounding a nerve.   After being told repeatedly that my facial nerve pain is unlikely to be caused by whatever is going on behind my eye since the trigeminal nerve does not pass near there.....guess what?  The MRI report clearly states that the "maxillary division of the left trigeminal nerve" is involved. I won't bore you with the details but basically the radiologists opinion is that as there has not been major change since January, a secondary breast cancer is unlikely (phew!).  A nerve sheath tumour is to be considered and a neurological opinion is recommended.  So this is now a completely separate medical 'issue'.   Can you believe it?!  Actually, I can and am quite calm about it.  What I'm NOT calm about is the amount of time this has taken to sort out.  I have made an appointment with the head of the MDT so I can find out what referrals they are making and why it is still taking so long.

I have my first appointment to find out about radiotherapy on Friday Poole.

I'm generally feeling good.  Have now lost five fingernails and five toenails but the damaged parts are very nearly growing and new nail growing really fast.  My hair is also thickening up now, picture below. Yesterday I met quite a few of my Tiny Talk families at another coffee morning, this time to raise money for Shine, and a great excuse to get together and catch up while eating cake!  It was lovely to see everyone and I am very grateful to everyone who organised it, donated things and came along.