Finally, a neurology referral

So, some progress has made on they eye front.  After seeing my surgical team leader person on Thursday I was able to get to the bottom of what's been happening about the lesion behind my eye.  My latest MRI scan was discussed at the orbital MDT who agreed with the radiology report that a neurology referral was the way forward.   I seem to remember that was what was suggested in January.......frustrating!  I wait with baited breath to see if an appointment letter graces my letter box this week!

I have my planning CT scan on Friday for Radiotherapy.  I am stupidly happy about the fact this is only an anatomical CT and so does not require my poorly veins to be involved....my right arm is only just recovering from the latest MRI, it got really sore again like during chemo.  Unfortunately everything has to be done on the right arm due to the lymph surgery on the left.

Adrian and I are off to London next Sunday for two nights.......WITHOUT the children!  What a treat!  This is thanks to a charity, the Eleanor Rose Foundation who get free tickets for various things to give away to people living with cancer or going through treatment.  We have tickets to see a filming of QI on Monday, very exciting.  I must also thank, in anticipation, Adrian's parents who have kindly agreed to babysit so we can go.  I'm looking forward to a relaxing break, I feel I really need it.  We went to the boat last weekend which was lovely but not the same as a lovely hotel!

I went running last week, for the first time since November.  It was more of a speedy walk interspersed with some gentle jogging, but it's a start.  My grand plan was to do this every day but once again my expectations greatly exceed my reality.  My legs burned for two days afterwards and just as I was regaining my strength I spent Saturday helping on a Beaver activity day, including a long walk over rough ground pushing a three year old.  Once again I was reminded of my limits.  I realise when they said it takes up to 18 months to recover from chemo that it may just be true, as much as I don't want it to be.  It makes me sad, furious and determined for it not to be the case, all at the same time.   All I can do is keep fighting to get back to how I was and try to be kind to my body when it tells me It's had enough for the day.