Neurology appointment

So today was the long awaited neurology appointment.  After testing various parts of my face with different implements the lovely doctor said he was convinced that I had a genuine neurological pain and didn't just have an aching face from being depressed.  I'm sorry but......*insert a range of choice swear words*....is that why this has taken so long and so much chasing up by me....they thought I was just depressed?!!!  The fact I have a one centimetre mass on part of my trigeminal nerve couldn't be the reason for my pain?  Anyway, let it go Jennifer!  So the story is the neurologist is quite convinced that it is a neuroma and it's not malignant.  However, the story is somewhat complicated by the fact that on the same side of my head I have small nodules on the back and inside of my ear.  I was due to have one removed analysed last December.  I had to cancel that surgery when I found out about the cancer and had to start chemo.  Because of the fact these nodules are on the same side as the nerve tumour behind my eye there is a suggestion of neurofibromitosis which is a condition you are born with.  I have no other clinical features of this but the neurologist would like to rule it our before any decisions about how to proceed are made.  So I'm booked in again with a surgeon at Salisbury hospital to have my ear operated on!!  You can't make this stuff up people!!  Surgery booked for July 1st, the day after I finish active treatment for Breast Cancer.   Ha ha ha, my life is crazy :-).  I've been mega healthy all my life, never even sniffed a hospital but I'm making up for it now.

I've had one trip to Poole today, now off to take Abi to ballet then back to Poole tonight for radiotherapy number 9 of 20....almost half way.  No horrible side effects as yet, skin holding up well and I'm combating fatigue by exercising.....more on that later.

X