Happy Holidays

We've returned from a wonderful 2 weeks on Black Pearl.  The girls were brilliant on the boat and apart from a few hairy moments in rough seas it was a very successful first big trip, can't wait for the next one.  Back to School and Pre School now and, for me, back to work in another 2 weeks!  I'm both nervous and excited at the prospect.

Health update.... I saw my surgeon yesterday to check out some swelling, pain and lumps and bumps that have been a worry for a few weeks.  I was reassured that it is all normal stuff from surgery and radiotherapy....damaged nerves and muscles.  Apparently when nerves start to re grow they can be painful and the damage done by radiotherapy can take up to 2 years to resolve, if ever.  I do wish they would tell you all the probable after effects from the start, it would save a lot of worry and waisted NHS time.

Of course on return from holiday I had a total of 4 NHS appointment letters!! One was just a reminder of an appointment I already knew about.  Two letters were about genetics investigations to make a diagnosis between Schwannomatosis and Neurofibromatosis 2.  I have an appointment next week to see someone at Poole Hospital to look for clinical indications of NF2. The final letter was a summary of the discussion at the Scull Base multidisciplinary team meeting in Southampton who have requested full imaging of my brain and spine to check for little mini schwanommas that may not have made themselves known yet!!!  I eagerly await that appointment letter to grace my door mat!  It is all incredibly tiresome dealing with this off the back of Breast Cancer and I'm sure it's equally tiresome to read about so I'll finish there and instead show you some photos from our lovely holiday.